Q: Who can
participate in the project?
The project
serves Holocaust survivors, including
orphans, and/or their second- and
third-generation descendants. The project
also serves those displaced by the Shoah who
may be looking to locate or identify lost
relatives.
As we are not
looking along maternal or paternal lines of
inheritance in our inquiry, both men and
women are viable participants in the
project. Our testing will examine
autosomal DNA, comprised of the 22 pairs
of chromosomes that are not sex-linked. This
does not permit as deep an investigation,
time-wise, but is more suited for
establishing kinship relationships within
two or three generations, without gender
limitations.
Q:
How long will the project take to complete?
We are currently
in the earliest stages of collecting DNA
from eligible participants. There are many
variables influencing the rate of
collection, including geography, political
events and the innovative technologies
involved in this effort, and we do not have
a precise timeline for notifying
participants of potential matches. For this
reason, we ask all participants to designate
a family representative whose contact
information is likely to remain the same for
the next 3-5 years.
Q:
What is the process of notification?
Since the
timeline for analysis has not been
delineated, it is not clear when we will be
notifying participants of matches. We will
notify every participant of a match, either
by telephone or in writing, but it is up to
the participant to decide whether or not to
pursue contact with identified matches.
Q: How do I know
my information is confidential and secure?
Our database is
divided into multiple sub-databases where
genetic data is kept separate from personal
contact information. Multiple clearances are
required to access any information, and only
in the case of a match would personal data
be made available. Our security procedures
are modeled after proven methods for
database security involving sensitive
medical information.
Q: How do I know
my genetic and my personal or contact
information will not be exploited or used
for cross purposes?
Your privacy is
of the utmost importance and your genetic
information will be held in strictest
confidence. Federal laws governing human
subjects research, along with stringent
regulations set forth by the University of
Arizona's Institutional Review Board, ensure
that out practices are held to the highest
scientific, ethical and regulatory
standards. The DNA Shoah Project will not
conduct any research on genetic samples not
will participants' information be shared
with any other entity or organization. More
information may be found
here.
Q: In your
literature, you mention the relevance of a
DNA database to identifying the remains of
victims in mass graves. Does this mean you
will be excavating Jewish remains?
No.
Periodically, mass graves are uncovered as a
result of urban expansion in Europe and,
sometimes, targeted excavations by other
humanitarian organizations. Actual
excavation or exhumation is outside the
scope of this project. However, we will make
our database available to those
organizations who have already secured
approval to exhume and/or identify the
remains of suspected Holocaust victims.
Q: Is there a
fee to participate?
No. There is no
fee to become involved, contribute DNA or
receive notification of potential matches.
However, as a nonprofit entity, we do accept
donations from both individuals and
organizations. More information about
charitable contributions to this project can
be found
here.
Q: How can I get
involved in organizing a collection?
The success of
this project depends on amassing as large a
database as possible, from contributors
around the globe. The more participants we
have, the greater the possibility of
reuniting families. To this end, we are
looking to launch a series of large-scale
remote collections at Jewish and other
community organizations nationwide. If you
are interested in administering such a
collection, please click
here.
Q:
What are the DNA Shoah Project's
affiliations and who are its sponsors?
Intial funding
for the DNA Shoah Project has been
generously provided by Arizona Research
Laboratories (ARL) at the University of
Arizona.
The project
operates under the auspices of the Genomic
Analysis and Technology Core (GATC)
facility, a division of ARL that provides
state-of-the-art molecular biology services
to both academic and private sector
researchers. More information may be found
here.
Your
tax-deductible donations made through the
University of Arizona Foundation, a
501(c)(3) organization, enable us to expand
our work throughout the country and around
the world. For more information, or to
donate, click
here. |